When Patients Create Their Own Medical Binders: A Powerful Way to Get Organized and Feel More in Control (HLOL #190)

Bridget Gaglio PhD, MPH is a Senior Program Officer for the Clinical Effectiveness and Decision Science program at the Patient-Centered Outcomes Research Institute (PCORI). She works to improve communication and dissemination of evidence-based information among patients and their healthcare providers. Gaglio has published papers on patient-centered communication, health literacy, and dissemination and implementation of health interventions. But this podcast isn’t about that. Rather, it’s about experiences and lessons Bridget and Helen each learned as patients.

In this podcast, Helen Osborne talks with Bridget Gaglio about:

  • Becoming a patient can happen in a moment, whether from an accident or unexpected diagnosis. Some reasons that communication can be very hard, even for patients who are good readers and savvy about health.
  • Why to create your own medical binder and what to include. How such binders (on paper, electronic, or both) can help patients feel empowered and more in control.
  • Tips, suggestions, and lessons learned for patients and providers, alike.

More Ways to Learn:

Health Literacy from A to Z: Practical Ways to Communicate Your Health Message, Second Edition (updated 2018),by Helen Osborne. Chapter 5 is especially relevant to this podcast, “Communicating When Patients Feel Scared, Sick, and Overwhelmed.”

Read the transcript of this podcast.

Participants, Providers, and Policy Makers Working Together for Better Care (HLOL #158)

frank-rider-ms-07-15Frank Rider, MS, has worn many healthcare “hats.” He is a senior financing specialist within the domestic Policy, Practice and Systems Change programs at the American Institutes for Research. One of his previous jobs was as Chief of the Bureau for Children’s Services for Arizona’s Division of Behavioral Health Services. And starting soon after college, Rider was a foster parent for both the Navajo Nation and state of Arizona. Frank Rider’s life-long commitment to family-driven care builds on all these experiences and perspectives.

In this podcast, Frank Rider talks with Helen Osborne about:

  • “Triple Aim” goals for better healthcare: Better experience, better outcomes, at lowest possible cost.
  • Dissonance and tensions that sometimes arise among differing perspectives.
  • Ways to work towards better care, whatever your scope of influence.

More Ways to Learn:

Patient-Centered Outcomes Research Institute (PCORI), at http://www.pcori.org

Health Literacy from A to Z: Practical Ways to Communicate Your Health Message, Second Edition (Updated 2018), by Helen Osborne. Relevant chapters include: 4, 13, 18, 27, 41

Read the transcript of this podcast.