When Patients Create Their Own Medical Binders: A Powerful Way to Get Organized and Feel More in Control (HLOL #190)

Bridget Gaglio PhD, MPH is a Senior Program Officer for the Clinical Effectiveness and Decision Science program at the Patient-Centered Outcomes Research Institute (PCORI). She works to improve communication and dissemination of evidence-based information among patients and their healthcare providers. Gaglio has published papers on patient-centered communication, health literacy, and dissemination and implementation of health interventions. But this podcast isn’t about that. Rather, it’s about experiences and lessons Bridget and Helen each learned as patients.

In this podcast, Helen Osborne talks with Bridget Gaglio about:

  • Becoming a patient can happen in a moment, whether from an accident or unexpected diagnosis. Some reasons that communication can be very hard, even for patients who are good readers and savvy about health.
  • Why to create your own medical binder and what to include. How such binders (on paper, electronic, or both) can help patients feel empowered and more in control.
  • Tips, suggestions, and lessons learned for patients and providers, alike.

More Ways to Learn:

Health Literacy from A to Z: Practical Ways to Communicate Your Health Message, Second Edition (updated 2018),by Helen Osborne. Chapter 5 is especially relevant to this podcast, “Communicating When Patients Feel Scared, Sick, and Overwhelmed.”

Read the transcript of this podcast.

A Patient’s Perspective about Health Communication (HLOL #131)

RJoffe web sizeRosalind Joffe is founder and president of ciCoach, giving people who live with chronic health conditions the tools they need to thrive at work. Rosalind knows these issues well as she herself as lived with chronic illness for over 35 years. As both a patient and consumer advocate, Rosalind chairs the Patient Engagement Council of Massachusetts Health Quality Partners. She’s a coach who writes, blogs, and speaks about chronic health challenges and its impact on career.

In this podcast, Rosalind Joffe talks with Helen Osborne about:

  • “Patient-provider engagement,” a term that reflects joint sharing of information.
  • Why two-way health communication matters so much to everyone today.
  • Examples and suggestions about ways that patients and providers can engage in collaborative, respectful, health communication.

More Ways to Learn:

  • Working with Chronic Illness: A blog about living and working with chronic illness and difficult health challenges. At http://cicoach.com/blog/
  • Joffe R, Friedlander J. Women, Work and Autoimmune Disease: Keep Working Girlfriend! A book published by Demos Health, 2008.
  • Massachusetts Health Quality Partners, at http://www.mhqp.org

Health Literacy from A to Z: Practical Ways to Communicate Your Health Message, Second Edition (Updated 2018), by Helen Osborne. Relevant chapters include: 5, 6, 19, 32, 41.

Read the written transcript.