Making Research Consent Forms Easier for Patients to Understand (HLOL #86)

Kristofer (Kris) Griffith is Manager of Human Research Regulations at The University of Texas MD Anderson Cancer Center. Among his many responsibilities, Griffith manages regulatory aspects of human subjects research as submitted through their Office of Protocol Research, edits the Human Subjects Research Bulletin and, along with an editorial staff, maintains MD Anderson’s Adverse Events Database.

In this podcast, Kris Griffith talks with Helen Osborne about:

  • Why research consent forms are so very difficult to write. And understand.
  • Strategies to help, including: listing side effects, using consistent and clear wording, formatting pages, and writing short summaries.
  • Useful tools, resources, and ways to learn more.

More Ways to Learn:

Health Literacy from A to Z: Practical Ways to Communicate Your Health Message, Second Edition (Updated 2018), by Helen Osborne. Relevant chapters include: 8, 12, 27, 30.

Read the transcript for this podcast.

Problematic Words in Health Research (HLOL #69)

Jessica Ridpath founded a research-centric plain language initiative called Program for Readability In Science & Medicine (PRISM) at Group Health Research Institute in Seattle, WA. In this initiative, Ridpath provides plain language editing, training, and consultation for health researchers, health education writers, hospital staff, and public health employees. Her focus is often on writing clear and understandable informed consent forms for research.

In this podcast, Ridpath talks with Helen Osborne about:

  • Informed consent forms for research. Why these forms can be difficult to read and ways to make them easier for the lay public to understand.
  • Problematic words. Examples of words and terms that may cause confusion even though these words are short and familiar.
  • Strategies and tools to improve understanding of health research concepts.

More Ways to Learn:

Health Literacy from A to Z: Practical Ways to Communicate Your Health Message, Second Edition (Updated 2018), by Helen Osborne. Relevant chapters include: 6, 8, 12, 16, 27, 28, 30.

Read a transcript of this podcast. 

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