Helping Teens Transition from Pediatrics to Adult-Centered Care (HLOL #132)

CDS CAC member Cory NourieCory Ellen Nourie, MSS, MLSP, is the Transition Social Work Coordinator at Nemours Alfred I. duPont Hospital for Children in Wilmington, DE. She supports young adults with disabilities and special health care needs as they transition to adulthood. Nourie is active in research and advocacy work, serves on numerous advisory boards, and frequently gives presentations about young adults’ disease self-management and transitions in healthcare services.

In this podcast, Cory Nourie talks with Helen Osborne about:

  • How a healthcare transition is a planned purposeful movement from pediatric care to adult medicine.
  • Ways children can start assuming responsibility for their own medical management.
  • What physicians, other clinicians, office staff, parents, and others can do to help.

More ways to learn:

  • Got Transition. Includes strategies for health professionals, youth, and families. At http://www.gottransition.org
  • Nemours Alfred I. duPont Hospital for Children produced a series of videos about healthcare transition. They include “Becoming an Adult: Taking More Responsibility for My Care” at http://youtu.be/cjXurYrFMZM

Read the written transcript.

A Patient’s Perspective about Health Communication (HLOL #131)

RJoffe web sizeRosalind Joffe is founder and president of ciCoach, giving people who live with chronic health conditions the tools they need to thrive at work. Rosalind knows these issues well as she herself as lived with chronic illness for over 35 years. As both a patient and consumer advocate, Rosalind chairs the Patient Engagement Council of Massachusetts Health Quality Partners. She’s a coach who writes, blogs, and speaks about chronic health challenges and its impact on career.

In this podcast, Rosalind Joffe talks with Helen Osborne about:

  • “Patient-provider engagement,” a term that reflects joint sharing of information.
  • Why two-way health communication matters so much to everyone today.
  • Examples and suggestions about ways that patients and providers can engage in collaborative, respectful, health communication.

More Ways to Learn:

  • Working with Chronic Illness: A blog about living and working with chronic illness and difficult health challenges. At http://cicoach.com/blog/
  • Joffe R, Friedlander J. Women, Work and Autoimmune Disease: Keep Working Girlfriend! A book published by Demos Health, 2008.
  • Massachusetts Health Quality Partners, at http://www.mhqp.org

Read the written transcript.

Learning and Teaching about Health & Insurance (HLOL #121)

BonnieBraunheadshotBonnie Braun, Ph.D., served as the first Director and Endowed Chair of the Horowitz Center for Health Literacy at the University of Maryland’s School of Public Health. Bonnie Braun is a lifelong adult educator. Her many accomplishments include authoring nearly 100 peer-reviewed articles, founding and chairing Health Literacy Maryland, and leading the creation of the award-winning consumer curriculum, Smart Choice Health Insurance.

In this podcast, Helen Osborne talks with Bonnie Braun about:

  • Teachable moments, when learners have a need or problem to solve.
  • Building a teaching framework based on well-established theories of adult learning, education, and psychology.
  • Who, why, what, and how. Essential questions to answer when preparing to teach about health or health insurance or other topics.

More Ways to Learn:

To read a written transcript, go to http://healthliteracy.com/transcript.asp?PageID=12071

Patients Unlike Others You’ve Treated Before (HLOL #120)

Becky-1546-5x7_ppBecky Curran was born an achondroplastic dwarf. She is passionate about finding a way to change how people with physical differences, including little people, are perceived in the media. Becky is committed to helping everyone accept the differences in others.

In this podcast, Helen Osborne talks with Becky Curran about:

  • Why health communication can be difficult when providers treat patients with rare disease and conditions.
  • A patient’s perspective about ways providers can build trust and communicate effectively with everyone.
  • How to portray the diversity of your audience in print and web materials.

More Ways to Learn:

To read a written transcript, go to http://healthliteracy.com/transcript.asp?PageID=12066

Before You Teach Find Out What Learners Know, Feel, and Believe (HLOL #119)

Susan ReidSusan Reid is the Consulting Manager at Workbase, a not for profit organization in New Zealand that specializes in workforce and health literacy issues. Susan and her colleagues are currently working with New Zealand’s Ministry of Health and healthcare organizations to identify the impact of health literacy on their systems, workforce, and patients and families.

In this podcast, Susan Reid talks with Helen Osborne about:

  • What to know about learners before deciding how much to teach.
  • How reading theory helps make health teaching more effective.
  • Examples of ways to learn about your learners.

More Ways to Learn:

To read a written transcript, go to http://healthliteracy.com/transcript.asp?PageID=12050

Communicating with Compassion (HLOL #118)

Dr.Beth Lown WebSize19Beth Lown, MD, FAACH, is a general internist at Mount Auburn Hospital in Cambridge, MA and associate professor of medicine at Harvard Medical School. She teaches learners across the spectrum of medical education. Among her many accomplishments, Dr. Lown is the first medical director of the Schwartz Center for Compassionate Healthcare, a nonprofit organization dedicated to strengthening the relationship between patients and care providers and creating more compassionate healthcare systems.

In this podcast, Helen Osborne talks with Dr. Lown about: 

  • Compassion. How it builds upon, yet differs from, empathetic concern.
  • Examples of ways to bring compassion into health communication.
  • How listeners can learn more about using these skills in practice.

More Ways to Learn

To read a written transcript, go to http://healthliteracy.com/transcript.asp?PageID=12017

Consultations are Conversations: How Clinicians and Patients Can Help (HLOL #117)

MontoriPhotoVictor M. Montori, MD is Professor of Medicine at Mayo Clinic. He not only is a practicing endocrinologist, researcher, and author but also a recognized expert in evidence-based medicine and shared decision-making. Dr. Montori developed the concept of minimally disruptive medicine and works to advance person-centered care for patients with diabetes and other chronic conditions.

In this podcast, Helen Osborne talks w Dr. Victor Montori about:

  • Patient-centered care. How clinicians and patients both bring expertise to this conversation.
  • Strategies busy clinicians can use such as setting priorities and advocating for the patient’s agenda.
  • Strategies busy patients can use such as bringing in an “extra set of ears” and asking questions

More Ways to Learn

To read a written transcript, go to http://healthliteracy.com/transcript.asp?PageID=12008

Creating A Health Awareness Campaign (HLOL #116)

NeyalHeadshot-SmallerNeyal Ammary-Risch MPH, MCHES, is the Director of the National Eye Health Education Program and Health Literacy Coordinator at the National Eye Institute of the National Institutes of Health. Her work includes overseeing programs that raise awareness about early detection and treatment of eye disease and the promotion of vision rehabilitation.

In this podcast Neyal Ammary-Risch talks with Helen Osborne about:

  • How campaigns can help raise awareness about big health topics.
  • Examples of helpful awareness-raising strategies. These include using multiple communication formats, training trusted sources (such as lay health educators), and creating community partnerships.
  • Ideas about ways to raise awareness about health literacy.

More Ways to Learn:

  • National Eye Institute, National Eye Health Education Program. With links to many useful resources including the Healthy Eyes Toolkit. At www.nei.nih.gov/NEHEP
  • Fertman CI, Allensworth DD, Health Promotion Programs: From Theory to Practice.Jossey-Bass (2010). Ammary-Risch wrote the chapter, “Communicating Health Information Effectively.”
  • Ammary-Risch N, In Mommy’s Garden: A Book to Help Explain Cancer to Young Children. Learn more and order online at http://books.canyonbeach.com/inmommysgarden

To read a written transcript, go to http://healthliteracy.com/transcript.asp?PageID=12005

Health Literacy & New Technology: An App Challenge (HLOL #115)

LierLanghansODPHPTo reach and teach people “where they are,” the Office of Disease Prevention and Health Promotion (ODPHP) in the U.S. Department of Health and Human Services challenged designers to create a “health literate app” for use on mobile devices (cell phones and tablets). This builds on health content from ODPHP’s consumer-oriented website about prevention, www.healthfinder.gov

This podcast is with the co-leader’s of ODPHP’s Mobile App Challenge:

  • Ellen Langhans (right, in the photo) is the healthfinder.gov Program Manager at ODPHP. Her role is to ensure the use of plain language and health literacy principles in healthfinder.gov along with its outreach and marketing materials.
  • Silje Lier is a Communication Advisor at ODPHP. She manages the outreach community for healthfinder.gov. She also supports outreach for many ODPHP initiatives including Healthy People 2020, Dietary Guidelines for Americans, and the National Action Plan to Improve Health Literacy.

In this podcast, Ellen Langhans and Silje Lier talk with Helen Osborne about:

  • How people use mobile devices to access health information.
  • What ODPHP’s Mobile App Challenge was and how it led to the development of an app that is creative, functional, and consistent with health literacy principles.
  • Good app features to include action-oriented content, longevity (capacity for the app to grow and change), and functions that keep users engaged.

More Ways to Learn:

Click link to read a written transcript, http://healthliteracy.com/transcript.asp?PageID=12001

Presenting Data in Ways that Work for Most People, Most of the Time (HLOL #113)

Pictures of Sally 2013Sally Bigwood lives in the United Kingdom and has worked in a number of fields including publishing, sales, government, and the UK’s National Health Service. These fields all need to communicate data in ways that everyday folks can understand. To help, Sally Bigwood along with her sister Melissa Spore, founded Plain Figures and co-authored the book, A Designers Guide to Presenting Numbers, Figures, and Charts.

In this podcast, Sally Bigwood talks with Helen Osborne about:

  • Presenting data as simply and clearly as possible.
  • Putting figures into a logical order.
  • Keeping comparisons close.
  • Rounding figures so they are easier to understand, compare, and recall.

More Ways to Learn:

  • Plain Figures. At http://www.plainfigures.com
  • Bigwood S, Spore M, The Designer’s Guide to Presenting Numbers, Figures, and Charts. The Allworth Press (2013).
  • Freeman JV, Walters SJ, Campbell MJ, How to Display Data. BMJ Books (2008).
  • “When Communicating Risk, Consider What Patients Need and Want to Know (HLOL #102).” Health Literacy Out Loud podcast interview with Dr. Brian Zikmund-Fisher. At http://www.healthliteracy.com/hlol-risk
  • “Clearly Communicating Scientific Information (HLOL #83).” Health Literacy Out Loud podcast interview with Dr. David Nelson. Athttp://healthliteracy.com/hlol-scientific-information

To read a transcript of this podcast, go to http://healthliteracy.com/transcript.asp?PageID=11877

Dentists and Patients: How to Communicate Clearly (HLOL #111)

Leila-Jahangiri-profile-image 2013Dr. Leila Jahangiri is a dentist, clinical professor and department chair in Prosthodontics at New York University College of Dentistry. NYU is the largest dental school in the United States and Dr. Jahangiri has vast experience in teaching and patient care. She focuses a considerable amount of time researching effective communications and is co-author of the book, A Guide to Better Teaching.

In this podcast, Dr. Jahangiri talks with Helen Osborne about:

  • How good communication starts even before the patient sits in a dental chair.
  • Ways to help reduce a patient’s anxiety and fear of pain or the unknown.
  • Strategies that dentists, medical professionals, and patients can use to improve communication.

More Ways to Learn:

  • Jahangiri L, Mucciolo T (2012), A Guide to Better Teaching: Skills, Advice, and Evaluation for College and University Professors. Rowman & Littlefield Publishers, Inc.
  • ADA (American Dental Association). With resources for professionals and the public. At http://www.ada.org.

Read a transcript of this podcast.

Comics and Medicine: That’s Health Literacy, Too. (HLOL #110)

MKMK Czerwiec is a nurse who makes comics. MK has a Masters degree in medical humanities from Northwestern University, where she developed and teaches a seminar to medical students called “Drawing Medicine.” With Ian Williams, a doctor in the UK who also makes comics, MK co-runs GraphicMedicine.org, a website that looks at the intersection between comics and the discourse of medicine.

In this podcast, MK Czerwiec talks with Helen Osborne about:

  • How comics use sequential art to tell about health, illness, and medicine.
  • Why comics are effective and how they transcend differences in culture, language, and educational level.
  • What listeners can do to find, create, use, and learn more about comics in medicine.

Ways to Learn More:

To read a transcript of this podcast, go to http://healthliteracy.com/transcript.asp?PageID=11843

PEMAT: Patient Education Materials Assessment Tool (HLOL #109)

cindybrachCindy Brach is the lead for health literacy and cultural competence at the Agency for Healthcare Research and Quality (AHRQ), part of the U.S. Department of Health and Human Services. Brach helped create several very important health literacy tools and resources including AHRQ’s Health Literacy Universal Precautions Toolkit and the Institute of Medicine’s discussion paper, “Ten Attributes of a Health Literate Health Care Organization.” Now, she is one of three authors of PEMAT: Patient Education Materials Assessment Tool.

In this podcast, Cindy Brach talks with Helen Osborne about:

  • How PEMAT differs from other patient education material assessment tools.
  • Using PEMAT to assess usability and actionability of print and audio-visual materials.
  • Putting PEMAT into practice. Including how to score items and then use these scores to compare patient education materials.

More Ways to Learn:

To read a transcript of this podcast, go to http://healthliteracy.com/transcript.asp?PageID=11799

Health Literacy and Pediatrics (HLOL #107)

Cronan_ Kate DSC6430Kate Cronan MD is a Pediatric Emergency Medicine physician, Associate Professor of Pediatrics at Jefferson Medical College, Director of Health Content Integration for the Nemours Children’s Health Media Center, and Senior Editor for KidsHealth.org. She is also an active and enthusiastic health literacy champion who co-chairs the Language Proficiency and Health Literacy Committee at Nemours/Alfred I. duPont Hospital for Children in Wilmington, Delaware.

In this podcast, Dr. Kate Cronan talks with Helen Osborne about:

  • Health literacy issues to consider when communicating with children, along with their parents or caregivers.
  • Strategies to help set a positive tone, put children at ease, and communicate medical information in ways they can understand.
  • Choosing words, using pictures, and otherwise being clear when teaching children about health and illness.

More Ways to Learn:

  • KidsHealth from Nemours. Communicating complex medical information in ways that parents, kids, and teens can understand. At http://kidshealth.org
  • Abrams MA, Dreyer BP, (2009) Plain Language Pediatrics: Health Literacy Strategies and Communication Resources for Common Pediatric Topics. Available as an eBook from AAP, at http://ebooks.aap.org/product/plain-language-pediatrics

To read a written transcript, go to http://healthliteracy.com/transcript.asp?PageID=11763

Dr. Rima Rudd Talks About the Health Literacy Burden in Healthcare (HLOL #15)

Dr. Rima Rudd is Senior Lecturer on Society, Human Development, and Health at the Harvard School of Public Health. Her work centers on health communication and the design and evaluation of public health programs. She teaches courses on innovative strategies in health education, program planning and evaluation, and health literacy.

Dr. Rudd is widely recognized as a leader in health literacy – helping to shape both the research and practice agenda in the US, Canada, and Europe. Dr. Rudd works closely with the adult education, public health, oral health, and medical sectors. Her current research looks at literacy-related disparities and literacy-related barriers to health programs, services, and care. Her Harvard website on health literacy serves scholars and practitioners.

In this podcast, she talks with Helen Osborne about the health literacy burden in healthcare. Topics include:

  • Literacy-related disparities and barriers as they relate to healthcare
  • Deconstructing healthcare language, instructions, and activities
  • Literacy demands in chronic disease management, prevention, and navigation
  • Why it’s time to reconsider the definition of health literacy

More Ways to Learn:

  • Harvard School of Public Health, Health Literacy Studies. www.hsph.harvard.edu/healthliteracy
  • Communicating Health: Priorities and Strategies for Progress (2003), US Department of Health and Human Services & Office of Disease Prevention and Health Promotion.  Dr. Rudd wrote the chapter about health literacy. Available at http://odphp.osophs.dhhs.gov/projects/healthcomm/
  • Literacy and Health in America (2004), Educational Testing Services. Dr. Rudd is one of the authors. Available at http://www.ets.org/Media/Research/pdf/PICHEATH.pdf
  • National Center for the Study of Adult Literacy and Learning (NCSALL), http://www.ncsall.net
  • Nielsen-Bohlman L, Panzer AM, Kindig DA, (ed), 2004. Health Literacy: A Prescription to End Confusion. The National Academies Press: Washington DC. Dr. Rudd was a member of the Institute of Medicine committee as well as writer/contributor to the book. Available at http://books.nap.edu

To read a written transcript, click http://healthliteracy.com/transcript.asp?PageID=11705

Len & Ceci Doak Discuss Health Literacy’s Past, Present and Future (HLOL #13)

Cecelia (Ceci) and Leonard (Len) Doak are a husband and wife team who, for over 30 years, helped lead the way to health literacy. Their book, workshops, and articles have inspired advocates everywhere to improve health understanding.

Ceci started as a commissioned officer in the US Public Health Service. During her more 20 years there, Ceci developed and led numerous health education programs. In fact, she received a commendation from the Surgeon General for her work educating the public about cancer.

Len comes to health literacy via adult education, volunteering for many years as a tutor of non-readers. Len’s first career was as a Navy engineer and among his many accomplishments he helped simplify instructions for crews working on ships and submarines.

Len & Ceci co-authored the award-winning book, Teaching Patients with Low Literacy Skills. In their non-profit business Patient Learning Associates, Inc., Len and Ceci have written guidelines for many important projects and analyzed the suitability of over 2,000 healthcare materials in virtually all formats. They have presented at more than 200 health literacy workshops, training thousands of health professionals in all disciplines.

In this Health Literacy Out Loud podcast, they talk with Helen Osborne about the past, present, and future of health literacy. Topics include:

  • How health literacy began more than 30 years ago
  • Why health literacy was important then and is even more so today
  • Strategies to improve communication and assess if messages are understood
  • Ceci & Len Doak’s vision for health literacy in the future

More ways to learn:

  • Doak, Doak, & Root, Teaching Patients with Low Literacy Skills, Second Edition. 1996. Available for free at Harvard University School of Public Health’s Health Literacy Studies website, http://www.hsph.harvard.edu/healthliteracy/resources/doak-book/
  • Houts, Doak, Doak, Lascalzo. “The role of pictures in improving health communication:  A review of research on the benefits of pictures on attention, comprehension, recall, and adherence.”  Patient Education and Counseling, 61 (2006) 173-190, 2005 Elsevier Ireland Ltd.
  • Osborne, H. “In Other Words…Can They Understand? Testing Patient Education Materials With Intended Readers,” On Call Magazine, Nov 2001. Available at http://www.healthliteracy.com/article.asp?PageID=3811

Click here for a transcript of this episode: http://healthliteracy.com/transcript.asp?PageID=1169 [Read more…]