End of Life Education (HLOL #157)

1_dk_kkKathy Kastner is founder and curator of the only patient/consumer-perspective website for end of life education, BestEndings.com, and author of the eBook, Death Kills… and other things I’ve learned on the Internet. Kastner also shares this information by speaking at healthcare conferences, blogging on health websites, hosting tweetchats, and participating in invitation-only think tanks. Kathy Kastner has received numerous awards for her advocacy and work in end of life education.

In this podcast, Kathy Kastner talks with Helen Osborne about:

  • End of life. An emotionally fraught topic often prompted by a new diagnosis, change in health status, or even news reported in the media.
  • Examples of words, terms, and end of life concepts that are often misunderstood.
  • Ways professionals can help improve education and understanding about end of life. Ways patients, families, and the public can help in these conversations too.

More Ways to Learn:

Health Literacy from A to Z: Practical Ways to Communicate Your Health Message, Second Edition (Updated 2018), by Helen Osborne. Relevant chapters include: 5, 8, 11, 13, 22, 41

Read the written transcript of this podcast. 

Legislation Giving Voice to Patients and Families (HLOL #47)

Deborah Wachenheim is the Health Quality Manager at Health Care for All (HCFA) in Boston, MA. The mission of HCFA is to create a consumer-centered healthcare system that works for everyone, especially those who are most vulnerable.

HCFA’s Consumer Health Quality Council drafted legislation that was recently enacted to establish Patient and Family Advisory Councils at all hospitals in Massachusetts. In this podcast, Wachenheim talks about the process of making this happen.

Topics include:

  • Patient and family advisory councils. What they are, how they help, and who they include.
  • Process of drafting and enacting a new statewide law.
  • Lessons learned about patient councils and the legislative process.

More ways to learn:

Health Literacy from A to Z: Practical Ways to Communicate Your Health Message, Second Edition (Updated 2018), by Helen Osborne. Relevant chapters include: 27, 30, 40.

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