Each Patient’s Information Journey (HLOL #165)

Andy Rosenberg has over 25 years of experience as a political lobbyist, Capitol Hill staffer and former congressional candidate. In 2010, he helped create a health policy and government affairs firm called Thorn Run Partners. More recently, Andy founded a startup company called Reponsum that is developing an innovative educational tool for people with chronic diseases.

In this podcast, Andy Rosenberg talks with Helen Osborne about:

  • While the Internet may first seem like a wealth of information, patients and caregivers can easily get overwhelmed with outdated, non-customized content.
  • Responsum, an upcoming online tool with curated patient education.
  • Lessons learned from mapping patients’ information journeys. Includes 5 stages of patient centered-ness: noticing symptoms, getting a diagnosis, searching and researching, deciding about treatment, and living with a chronic disease.

More Ways to Learn:

PCORI’s Advisory Panel on Communication and Dissemination Research. Learn more at http://www.pcori.org/get-involved/join-advisory-panel/advisory-panel-communication-and-dissemination-research

Read the transcript of this podcast. 

Reporting about the Patient Experience (HLOL #138)

BarbaraLambiaso.2013Barbara Lambiaso is Senior Project Manager for Communications at Massachusetts Health Quality Partners (MHQP) based in Watertown, MA. Building on many years of experience in health and health care communications, Barbara oversees all aspects of HealthcareCompassMA.org, a website where the public can find easy-to-understand information and data about quality healthcare in Massachusetts.

In this podcast, Barbara Lambiaso talks with Helen Osborne about:

  • Designing a useful, usable consumer website based on healthcare quality data.
  • Making choices about navigation, wording, images, and layering of information.
  • Working with the intended audience to make this website even better.

More Ways to Learn:

Read the written transcript.

How to Find and Use Health Apps (HLOL #137)

rschnallRebecca Schnall, PhD, RN, is a nurse-researcher whose work focuses on informatics strategies for persons from underserved communities. One of her many accomplishments is researching ways that health information technology can help prevent disease, improve care, and reduce health disparities for persons at risk for, or living with, HIV.

In this podcast, Rebecca Schnall talks with Helen Osborne about:

  • What are apps? What are health apps? Examples of how apps can provide real-time, personalized, health information that patients want to know and use now.
  • Tips for finding good health apps. Including how to search for what you need, what to be cautious about, and issues of privacy and confidentiality.
  • Looking ahead to what’s next in health app technology.

More Ways to Learn:

Read the written transcript.

Why Health Professionals Should Go Online (HLOL #128)

Kevin Pho for Health LeadersDr. Kevin Pho is an internal medicine physician and founder of the very popular, award-winning health blog, www.KevinMD.com. Dr. Pho’s unique perspective as a practicing physician and health care social media leader has been recognized by hospitals, medical societies, universities, and mainstream media that includes CBS Evening News, CNN, USA Today and the New York Times.

In this podcast, Dr. Kevin Pho talks with Helen Osborne about:

  • Social media: A platform that providers and patients can use to share stories, curate content, and get health messages heard.
  • KevinMD.com. Why Dr. Pho created this blog and how it has changed and grown over the years.
  • Suggestions, recommendations, and cautions about using social media to spread your health message.

More ways to learn:

Read the written transcript.

Health Literacy & New Technology: An App Challenge (HLOL #115)

LierLanghansODPHPTo reach and teach people “where they are,” the Office of Disease Prevention and Health Promotion (ODPHP) in the U.S. Department of Health and Human Services challenged designers to create a “health literate app” for use on mobile devices (cell phones and tablets). This builds on health content from ODPHP’s consumer-oriented website about prevention, www.healthfinder.gov

This podcast is with the co-leader’s of ODPHP’s Mobile App Challenge:

  • Ellen Langhans (right, in the photo) is the healthfinder.gov Program Manager at ODPHP. Her role is to ensure the use of plain language and health literacy principles in healthfinder.gov along with its outreach and marketing materials.
  • Silje Lier is a Communication Advisor at ODPHP. She manages the outreach community for healthfinder.gov. She also supports outreach for many ODPHP initiatives including Healthy People 2020, Dietary Guidelines for Americans, and the National Action Plan to Improve Health Literacy.

In this podcast, Ellen Langhans and Silje Lier talk with Helen Osborne about:

  • How people use mobile devices to access health information.
  • What ODPHP’s Mobile App Challenge was and how it led to the development of an app that is creative, functional, and consistent with health literacy principles.
  • Good app features to include action-oriented content, longevity (capacity for the app to grow and change), and functions that keep users engaged.

More Ways to Learn:

Click link to read a written transcript, http://healthliteracy.com/transcript.asp?PageID=12001