The Family’s Voice in Practice, Research, and Foundations (HLOL #186)

Sharon Cray earned a degree in accountancy and worked in business for several years. She entered the world of healthcare as a parent, caregiver, and active volunteer when two of her three children were diagnosed with Cystic Fibrosis (CF). Her participation now includes volunteering with the Cystic Fibrosis Foundation and serving on the Family Advisory Council at St. Christopher’s Hospital for Children in Philadelphia. Cray is an active member of the I-PASS Family Centered Rounds Study Team, co-authoring the research paper, “Patient safety after implementation of a coproduced family centered communication programme,” published in the British Medical Journal.

In this podcast, Sharon Cray talks with Helen Osborne about:

  • Family voice. A shared mental model that helps providers better understand the needs, wants, and lived experiences of patients and their families.
  • Ways the family voice makes a difference in practice, research, and foundations.
  • Recommendations for providers about finding and working with family partners.
  • Recommendations for families about getting involved, being listened to, and helping.

More Ways to Learn:

Health Literacy from A to Z: Practical Ways to Communicate Your Health Message, Second Edition (Updated 2018), by Helen Osborne. Relevant chapters include: 5, 6, 7, 8, 17, 24, 29, 31, 41

Read the transcript of this podcast.

 

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